I find the fatigue part of the lupus to be overwhelming. Just being tired is depressing. Especially when I know that I should be more alert, energetic and productive. I have this list in my brain I need to tick off. If I don't at least touch parts of the listed items, I feel crappy. That sounds a bit OCD doesn't it.
Part of the reason I write is to clear my head of all the stuff I have in there. That includes stories, opinions, irritations, random thoughts, etc. When I don't get a chance to express any of it, because I'm too fatigued for example, I get into a pretty serious funk that feeds on itself. Those funks are dangerous. They can send me into an ever downward spiral that ultimately does irreparable harm.
Now I have to identify my most productive times, and schedule myself to them. I can definitely tell you I am NOT a night owl. I am so tired of people and just life in general after work that I want to be left alone. That very rarely ever happens.
I'm tired of being tired. But it's part of the issues. As I work through what works and doesn't, I understand that the fatigue might get better, or I'll be able to manage it better.
I watch my nieces and nephews zoom around and wonder if I can borrow a little of their energy for a little while. They seem to have an overabundance of it.
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