Tuesday, August 30, 2011

Oh Me, Oh My..

I find this journey I am on fascinating and frustrating.  That's right my life has turned into an oxymoron.

I still struggle with exhaustion, which drives me around the bend.  The irony is that caffeine just makes it worse, so I'm working on a balanced diet (I miss Diet Dr. Pepper). I feel like Lupus is turning me into a old woman.  I AM NOT OLD!

And, I still am dealing with headaches, though they are now a dull roar instead of stabbing pain.

The body is still achy and unhappy.

Have I whined enough?

The good news is I am forced to manage my time and interests with an iron fist.  Saying 'no' tactfully has become an art form in my personal and work life.

Would I be this organized if I didn't have Lupus?  Maybe a little less driven, but determined to make my goals.

All I know is that my reality has shifted and I'm learning how to deal with it.

Friday, July 29, 2011

Domino Effect

A week ago, I was involved in a car accident.  Aside from some muscular issues, I came out of it okay AND my car can be fixed. I can not tell you how lucky I was.  It could have been so much  I'm now feeling about 90% back to normal.  

The good news is no one was seriously hurt AND they can fix my car.  

Why do I tell you all this?  It would seem that my Lupus wanted to get into the act.  Apparently, it was feeling neglected. sigh.


I understand that I experienced a traumatic event, but couldn't the flare I'm experiencing coincide with the days I felt crappy from the accident?  Of course not.  I'm achy joints, experiencing headaches and my fatigue level has gone up a notch.  

Don't get me wrong, I am filled with Gratitude.  The entire experience could have been so much worse.  I just wish my body would get its act together.

Friday, July 8, 2011

Paying the Piper

I'd say that the last few months have been easy, without incident and happy.

I'd be lying.

I've accomplished a lot.  If you couldn't tell, I write.  I have a number of blogs AND I've finished a manuscript for my first novel and am seeking representation AND I work full-time AND see to the welfare of my senior parent AND trying to maintain a balance.

I'll be the first to admit I've dropped a few balls along the way.  My body rebelled.  I pushed to far and paid the price.

Here is the hard part.  I still don't 'look sick' according to people who are around me.  How do I explain to them looking sick has nothing to do with the body aches, the headaches, joint pain and debilitating exhaustion.  And let's not forget weird rashes.  And my particular favorite, my particular blessing,  reoccurring shingles.

I find ways to soldier through it all. I have to.  I rest when and where I can.  The rub is, only I can pay my bills, put food on my table and kibble in my dog's bowl.

I'm living on a deferred payment plan and if I am not careful, the bill will come due in full.